A citizen science website
People with rheumatoid arthritis know better than anyone how it is to live with this condition. This experiential knowledge is very valuable in research and we would like to incorporate this in the TOPFIT Citizenlab. In the past period we have asked patients with rheumatoid arthritis how patients and researchers can best cooperate, through conversations and a survey.
The idea of a website on which patients and researchers can work together was very well received. On such a website, patients can, for example, put forward research ideas, start their own research or join research conducted by others.
In the coming period we, as researchers, will be working together with patients to create and test the website. Are you curious about this project? Then keep an eye on this website.
You can find the detailed results of the conversations and the survey here.
This short video explains the concept of the website portal.